lifewithlimits

CFS/ME POTS ITP It's still a life, just a life with limits! 🌈💖🌊🌞⛈

New month, same crappy symptoms. I honestly despair at times. My body just likes to be laid down so I'm not going to argue. It would be the day hubby and I have made plans to go for a meal ...
When you have a complete out of the blue crash day and your bezzie doesn't leave your side! I adore this doodle! @izziewoo.bentley_minidoodle
#cfs #me #pots #lifewithlimits #crash #poorly #doodles #doodlesofinstagram #adored #mamsbezzie #morethanjustadog #cuddles #izzie #izziewoo
Can I ask if anyone else has problems eating and their tongue getting in the way? I was really exhausted last night and managed to bite my tongue 3 times. It just doesn't seem right but happens quite a bit ...
💙💖💙💖💙💖💙💖💙💖💙💖 #cfs #me #pots #myalgicencephalomyelitis #chronicfatiguesyndrome #support #blueheart #findacure #millionsmissing
Eeh aren't filters great! I've just been taught by my daughter. I have the time to learn new things now but not much brain capacity. 😂 We had a really good laugh doing these - really cheered a particularly crappy ...
If only the Atos Assessor could crawl inside my hurty, poisoned body and head today - like I tried to explain, it would be after the assessment I would suffer the most. The assessment itself wasn't terrible, it was mostly ...
Aw I felt well and truly spoilt yesterday 😍😍 I had a fab day and night with all the amazing people I have in my life. A few friends popped over throughout the day which I just loved then a ...
Last day in my 30s. Life begins tomorrow!! 😂😂😊💙💖
I always had big plans for my 40th. A trip to Vegas and a huge party for everyone and a family holiday... the list went on. This illness really puts things ...
Has anyone else seen this interview? Any thoughts? Or has anyone actually been treated by Dr Perrin. I've just began reading his book (it's due to be updated next year I think he said) I found the interview really interesting ...
Just had @izziewoo.bentley_minidoodle out for a short gentle walk not realising it's blowing a gale which has made the walk a million times harder. 😩 My calves are so tight and sore and need a rub but I have no ...
It's been nice being snuggled in bed all day watching the snow come down, recovering from being out and having a meal with friends last night. I feel like I've ran a marathon but I'm so grateful I got to ...
Please read 💙💖
#charitysingle #justletmecry #actionforme #jamesreayofficial #cfs #me #chronicfatigue #findacure #preorder
Aiming to raise £250,000 to raise awareness and funds for #actionforme 💙💖
It's official! For the first time in nearly 24 years I don't have a job. I'm really not sure how I feel - worried, relieved, angry... I just don't know. I think I'm actually happy knowing I don't have to ...
Izzie just loves a bottle!! A bit of a crazy walk with her today in the dusting of snow. So happy I got out and she's just happy full stop!! #cfs #me #pots #lifewithlimits #chronicillness #chronicfatigue #findacure #izzie #snow #plasticbottle ...
Feel good about donating some warm clothing and toiletries for the homeless. Feel bad that I can't do more 😢 Everyone should have a home! 😢
#donate #help #itssocold #helpingothers #givingisgood #helpthehomeless
Extra hay tonight little bunnies - its a mega cold one! 😍😍😊⛄❄💖💖#bunniesofinstagram #ilovebunnies #happybunnies #bunnylove #cfs #me #pots #lifewithlimits #invisibleillness #chronicillness #findacure #crazyrabbitlady #rueandbaby #lionhead #agouti #gorgeousgirlies 😍😍😍
Back to being positive today. 😊😊 Needing positive inspiration and found this. I struggle to accept that things are so different now and still try to do far too much and crash and then get myself down. I try too ...
and not for the better. There wasn't even anything I wanted to change!! 😢😡 I miss being me! 😢
#cfssucks #cfs #me #chronicfatigue #pots #pacing #lifewithlimits #anotherdaywasted #findacure #restisbest #frustrated #iwantmylifeback
Repost everyone please!
Raising money for #actionforme
#cfs #me #chronicfatigue #cfssucks #findacure #charitysingle #actionforme #jamesreayofficial #justletmecry
Reposted @jamesreayofficial
Amazing song 💖💙
Where's the off switch? Where's sleep mode? Rough day 😢😩
I spend all of my time with my doodle Izzie - she is my constant bezzie when the family go off to work, school and college. I love giving her treats for all the fab things she does for me ...
Twilight and Charlie had a fabulous time trashing my garden pots today. 🌱⚘😂 Happy bunnies! 🐇🐰😍😊#cfs #me #pots #lifewithlimits #chronicillness #chronicfatigue #bunniesofinstagram #ilovebunnies #happybunnies #mybunniesmakemehappy
Absolutely love my new bunny cushion my mam bought me yesterday. It has the cutest softest ears! 😍😊🐇🐰 #cfs #pots #me #chronicfatigue #lifewithlimits #bunnycushion #ilovebunnies #cuteasbuttons #bunnylove #softears
I found this very interesting. I wish I could go back and have a stern word with myself. All the signs and alarm bells were there - I just pushed and pushed until that final bug hit me like a ...
So happy to watch my daughters dance at the weekend. A few weeks ago I relapsed terribly out of nowhere but I'm getting much better at recognising signs and symptoms and resting my way to a better state of health. ...
Watching the local town council fireworks display from the comfort of my daughter's bed. Lovely heat from the radiator, soft bed to sit on and a good distance and window for the noise not to be a problem. Perfect! 😊🎆🔥💖💙🌈🌊
Body: You wanna play a game?

I'm sure at this point I said NO!! I hate being ignored!! 😩😡 #cfs #me #pots #pacing #lifewithlimits #newdaynewsymptoms #gettingworseagain #tryingtobepositive #somedaysarejusthard
I missed another dance comp today but my lovely, thoughtful girls bought me pics!! It was a fab surprise and really cheered up a bit of a poorly afternoon. Super proud of them both and I am thrilled with my ...
Scary but exciting times ahead! For the first time in nearly 24 years I don't have a job. I have been off sick since my life turned upside down in January and I am still nowhere near well enough to ...
And positive things will happen!! 🙏🖒💖💙☄🌞🌊🌧🌈
#cfs #me #pots #rethink #newme #lifewithlimits #chronicillness #invisibleillness #pacing #newlife #findacure #lookahead #positivevibes

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